Community valued roles and Social
Role Valorisation (SRV)
Social Role Valorisation (SRV)
Deinstitutionalisation
Disability services
Disability and community
How
does the community care?
The
role of Social Role Valorisation in the community
Community care
Vs
Institutional (social) care
The
institutionalisation of community care
Disability services
role
models
A
local community group (LCG)
Personal
Fulfillment, Values and The Role of Supportive Communities
Social
roles Vs Community roles Vs Identity
Explanation
of
terms
The goal of the human services
is to
make a positive difference in a
person's
life. There are things we can
change (values, attitudes, behaviours, cultures etc.) and things we
can't change
(available resources etc.). By enabling people to fulfill their needs,
develop community networks, participate in activities and share
experiences
within their community, they have the opportunity to become valued
members of their community. Conversely, by enabling each community to
fulfill the needs of its members, to foster and develop personal
networks
within that community, to facilitate strategies, solutions and
activities
so that all members have the opportunity to participate in those
activities,
and connect with other members through shared experiences and
valued relationships,
the community has the opportunity to become valued by its members as
well as other communities that it is a part of.
Community valued roles and Social
Role Valorisation (SRV)
Each community has a particular role that fulfils a particular need.
Valued community roles provide a common cause or focus for the
community, as well as other communities that are a part of it.
Valued communities provide valued roles for their members.
Social role valorisation provides valued roles for ALL members of the
community.
Communities that have valued roles in society …
... The spiritual community
... The family community
... The living community
... The recreational community
... The learning community
... The employment community
... The health community
... The internet community
... The blind community
... The disability community
etc
The values of community start in the home where children have valued
roles in supporting others at school, sport or any other community that
they participate in.
Communities that have de-valued roles in society …
... The AIDS community
... The drugs / rave communities
... The criminal community
... The gay / lesbian communities
... The Muslim community
... The bikie community
... The street community
... The unemployment / homeless communities
... The aged community
... The single parent community
etc
Community valued roles and Social Role Valorisation (SRV) complement
each other in providing valued roles for each community in supporting
people with high support needs as well as providing valued
relationships within each community.
The good life
Today disabled people generally have more opportunities to access
social activities (shopping, movies, functions etc) that most of us
take fore granted. Various government policies are designed to allow
entrance to buildings, parks and other venues so that disabled people
could participate in and share the same experiences as others in
society.
"The good life" means different things to different people. Only by
developing the necessary skills, networks and valued relationships
within his/her community (living, recreation, education or employment)
can a person participate in, and become a valued part of their
community. The needs of the person also needs to be balanced with the
needs of the community in providing the most appropriate outcome for
the person (people with high support needs will need a more structured
setting than people with low support needs).
"The good life" could be described as: having the opportunity to
participate in activities and share experiences etc (whatever the
setting, structured or unstructured), in a positive way, where all the
participants have valued roles. Although the settings are more
structured and therefore more restrictive, it is possible for people
with high support needs to have as good a life as possible that is most
appropriate to their needs. (See also
Disability services
role
models).
The role of the family in the community
The values of community start in the home where children have valued
roles in supporting others at school, sport or any other community that
they participate in.
Communities (recreation, employment
etc.) are not
the same as there were 20 or 30 years ago. The
telephone, radio, TV, motorcar, and now the
Internet has changed our world forever. Advances in medicine,
technology,
health and knowledge in various conditions has meant that people with
high support needs are living longer and healthier today. This group is
becoming larger each year.
Of course these groups should have the same opportunities and rights as
anyone else in the community. I am not advocating that we should lock
them up or anything like that, however, we should provide the most
appropriate care for the person as well as each community that the
person is a part of, where the community has the knowledge, skills
and
resources to look after their needs. Whether a person is a part of the
community of a service, or a number of communities, the person should
have the same opportunities as others within society.
"The Western
Australian population will increase by about 22 per cent to more than
2.55
million people
between 2008 and 2023 with most increase in the over 65 age group.
The total number of
person's who identify themselves as having a disability will increase
by about 38 per cent
to around 632,600 by 2023." (DSC
: Disability Future Directions, 03/2010 : P.37)
We talk about the new
generation and what they may do with their inherence.
... What will
families be like in the future?
... How will they look after
the needs of
you and me in 30 or 40 years time?
... Will communities have the
knowledge, skills and resources to look after
our needs?
... What will be the role of a
community in supporting people
with high support needs?
... What will be the role of
Gov.
policy and practice in supporting people
with high support needs?
... What will the current
service organisations
(ACTIV, TCCP etc.) be like in 30 or 40 years time?
... Will we depend on
these organisations in the future?
Families have lost their
knowledge, skills and resources in providing
for the elderly. The socially accepted thing these days is to place
them in a nursing home while we carry on with more important things.
Other communities also have lost the
knowledge, skills and resources to look
after the needs of disadvantaged people and rely on organisations
instead. Today we see a rising population, which is getting older,
resources are
being stretched, pressure in existing services is increasing etc. etc.
I
would not be surprised to see these current service organisations
(ACTIV, TCCP etc.) become the institutions that Wolfensberger and
others wrote
about in the past (full circle). In fact I really think that it is
already happening today and it's to late.
Maybe it's the society that
we live in, that we need to
deinstitutionalise, rather that the disadvantaged people that we are
trying to deinstitutionalise. We need to provide valued roles to
families and communities in looking
after the elderly, people with disability and other disadvantaged (poor
and destitute, and other medical conditions) so they have a future.
Families are groups of
people that have strong bonds with each other.
They are connected with
each other through bloodlines (brothers,
sisters, nephews, cousins etc.) or some rite of passage or ritual that
recognises the person as a part of the family (marriage, adoption,
initiation
into a family etc.). A group of people with criminal
activities is also
refered to as a family.
Have a defined set of
roles, values,
cultures, behaviours, expectations
etc.
Ownership: The members feel a
part of the family
Support
Trust
Share resources
Security
The traditional idea of a
family unit, where the members spend time
together, where the elderly are respected and looked after as a part of
the family, where a person with high support needs would be looked
after by the family, where the members are dependent on there own (or
friends) resources are almost gone. When a family could not cope, they
could ask for help from their friends or a local community group such
as a church, school or community service group (Rotary, YMCA, Lions,
Salvos etc.) or the local hospital. The community managed to support
itself. There were no government agencies as we know them today around
then.
Marginalised groups (aged, people with
disability, poor and destitute, ethnic groups etc.) were devalued and still are today, and
will probably
always be. However while some practices were seen as cruel, these
families and communities did the best they could with the knowledge,
skills and resources that were available at the time. The aboriginal
culture for example was also regarded as primitive, barbaric and
uncivilised, but we are just beginning to appreciate their way of life.
If you have an honest look at our own society today and what we do to
each other, the aboriginal culture may seem tame in comparison.
The role of the living community
The right to accommodation that most suits the persons needs, and
access to community activities and facilities.
Just because the person with high support needs is living in a single
dwelling, a group home, an enclave or an estate etc that is managed by
a local community group (
LCG),
does not mean that that the person does
not have the opportunity to develop valued relationships and shared
experiences within the facility and the wider community. The person
also has the opportunity to meet with others in the community
(neighbours, at the shops etc).
By the inclusion of representatives of other community groups in the
LCG (LAC - Local Area
Co-ordinator -, local club, local school, church
etc), strategies and solutions can be found where people with high
support needs are valued and have valued roles within that community.
Through the development of community links and networks, solutions can
be found to issues such as:
transportation
medical needs
specialised equipment
personal needs
etc
within the community.
The person still has the opportunity to access an organisation or
service (LAC and other Gov. dept's, TCCP, Activ, Swan taxies, IDEntity,
HACC etc) that specialise in a particular area of care for the person,
within the facility that is co-ordinated by the
LCG.
The living community gains the skills, knowledge and resources to
provide for the needs of its members.
The role of the recreation community
The right to participate in those activities that are most appropriate
for the person towards developing valued relationships and shared
experiences within that community and the wider community.
The club, group or organisation's role is to provide activities
designed to fulfil the needs of its members.
With the help of the
LCG
solutions can be found where people with high
support needs are a part of that community.
Depending on the persons needs, the recreation can be within a
community facility, the wider community or a mixture.
People with high support needs still have the opportunity to develop
valued relationships and shared experiences in a non-participatory
sense:
Bowling
Painting:
Stamp club: The person has an opportunity to learn about stamps
Photo club: the person can not take photos, but still has input into
the process and discussions on photography
Fishing: the person still has the opportunity to participate in the
activity and share the experience of catching the fish, even though
someone else caught it.
Horse riding: the riding community may have a buggy etc where the
person has the opportunity to go riding with the other members.
Etc
Each recreation community that the person is involved with gains the
skills, knowledge and resources to provide valued relationships and
shared experiences.
The role of the education community
The right to the development of skills and knowledge towards a more
active and productive engagement with others within the wider community
(valued roles).
The role of education is to provide of skills and knowledge to it's
members.
In a classroom, for example, (1): the type of activity is structured
towards learning and the gaining of skills and knowledge in applying
the learning, (2): the setting is separated (restricted to members that
fulfil a set of criteria etc) and (3): the roles of the members are
Teacher (imparts the knowledge)- Students (learn the knowledge).
Introducing other roles into this community (social system) may create
some problems.
This does not mean that people with high support needs are
disadvantaged. On the contrary these people will be advantaged in that
(1): the education is designed to suit their needs and, (2): may
encourage the development of valued roles within the community if done
properly.
Through the co-ordination of the
LCG,
solutions can be found to issues
such as:
transportation
medical needs
specialised equipment
personal needs
etc
within education community
Just because the person is in another class, does not mean that the
person does not gave the opportunity to develop valued relationships
and shared experiences within the facility.
The role of the employment community
The right to a more meaningful and productive life.
Gainful employment means: being able to fulfil our needs, provides us
with a sense of value and worth in others, and an achievement, as well
as ourselves and satisfaction in what we do.
By being a part of a
LCG
representatives of the employment community
can be more actively involved in developing strategies that support
people with high needs. Through the co-ordination of the
LCG, solutions
can be found to issues such as:
transportation
medical needs
specialised equipment
personal needs
etc
within the employment community
Local community services are a start to people becoming a valued
resource in the community.
Bob's gardening
Paul's painting
The employment community would have the support of the
LCG in providing
the skills and knowledge in providing for people with high support
needs.
The facility may be a home, work place, office or factory. The setting
may be separated, partially integrated or fully integrated. The most
important thing is that the person has the opportunity to participate
in a gainful activity, and be valued as a part of that community.
When providing the most appropriate
care for people with high support
needs ...
1) The community is not where the
person is living, but where the person participates, shares experiences
and has valued relationships with others.
2) People with high support needs (severe disability, aged etc.)
will always need support structures as a part of their lives.
3) The amount of participation in a community (living, education,
employment or recreation) is directly related to the skills and
resources of the person, and, the skills and resources of the community
that the person wishes to participate in.
4) Institutions are going to be around in one form or another
whether we like it or not, It is the way that they are used that is the
problem.
5) The institutions of a society towards a particular group determine
the way the group participates in society.
6) The institutions of a particular government department,
organisation, profession or service define the way the person is
supported within that society.
7) Facilities that support people with high support needs do not
need to be the nursing homes or prisons in the sense that they are
today, but can become warm inviting community places that offer a range
of services to the community, as well as be a part of the wider
community.
8) People with high support needs are a minority group in our
society, and will have the same problems as other minority groups in
being a part of society.
01/10/2010
Peter Anderson
http://www.psawa.com